Contents

Issue 129 | Summer 2024

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Lymphoma Action is the UK’s only charity dedicated to lymphoma, the fifth most common cancer in the UK, and the most common among young people aged 15 to 24. We’ve been providing in-depth, expert information and a wide range of support for over 35 years, helping thousands of people affected by lymphoma. Our work drives improvements in the diagnosis, treatment, and aftercare of lymphoma. We’re here for you.

Every donation to Lymphoma Action makes a difference to people affected by lymphoma.

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Views expressed are those of the contributors. Lymphoma Action does not necessarily agree with or endorse their comments. © Lymphoma Action 2024. For further information about permitted use of our materials, please refer to our website.

Editor: Anne Hook

Cover: Jacqueline, who shares her story on page 12.

3 Welcome

A letter from Ropinder

4 Latest news

Recent developments

5 Personal story

Alex, diagnosed with DLBCL

6 Fundraising

Let's zip for lymphoma!

7 Medical opinion

Does age matter?

8 Personal story

Penny's CNS lymphoma

9 Lymphoma interest

Sir Anthony Epstein and lymphoma

10 Fundraising

Cakey bakey

11 Back to basics

Spotlight on active monitoring

12 Personal story

Jacqueline’s NHL story

14 Clinical trials update

Lymphoma TrialsLink

16 Top tips

Managing peripheral neuropathy, itch and sweats

17 Services

New Preparing for Treatment Service

18 Save the date

Live your Life workshops

To make a comment, to sign up, or to unsubscribe from the magazine, telephone 01296 619400 or email publications@lymphoma-action.org.uk

Lymphoma Action Unit 3, Bell Business Park, Smeaton Close Aylesbury, Bucks HP19 8JR www.lymphoma-action.org.uk Freephone helpline 0808 808 5555

With thanks to Abbvie, BMS Celgene, Roche UK, Serb Pharmaceuticals and Sobi for funding this issue of Lymphoma Matters. As per our policy they have no influence over our content.

Company Registration No 03518755 Charity Registration (England and Wales) No 1068395 (Scotland) No SC045850.

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