Contents

Issue 131 | Spring 2025

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Lymphoma Action is the UK’s only charity dedicated to lymphoma, the fifth most common cancer in the UK, and the most common among young people aged 15 to 24. We’ve been providing in-depth, expert information and a wide range of support for over 35 years, helping thousands of people affected by lymphoma. Our work drives improvements in the diagnosis, treatment, and aftercare of lymphoma. We’re here for you.

Every donation to Lymphoma Action makes a difference to people affected by lymphoma.

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Views expressed are those of the contributors. Lymphoma Action does not necessarily agree with or endorse their comments. © Lymphoma Action 2025. For further information about permitted use of our materials, please refer to our website.

Editor: Anne Hook

Cover: Newman family who fundraised for us.

3 Welcome

A letter from Ropinder

4 Latest news

Recent developments

5 Results

Lymphoma Coalition patient survey

6 Fundraising

Making your donation go even further

7 Clinical opinion

Spotlight on steroids

8 Personal story

Lorraine’s transformed lymphoma

9 Back to basics

Drug development

10 Personal story

Cliff's caring experience

11 Lifestyle

Making plans

12 Fundraising

Thank you!

13 Personal story

Mark's Hodgkin lymphoma

14 Support for you

Feel less alone with lymphoma

15 Fundraising

Set yourself a challenge

16 Top tips

Anxiety around tests and procedures

17 Update

Nutrition module launched

18 Services

Here for you

19 You're invited!

Lymphoma Information Days

To make a comment, to sign up, or to unsubscribe from the magazine, telephone 01296 619400 or email publications@lymphoma-action.org.uk

Lymphoma Action Unit 3, Bell Business Park, Smeaton Close Aylesbury, Bucks HP19 8JR www.lymphoma-action.org.uk Freephone helpline 0808 808 5555

With thanks to AbbVie, Kyowa Kirin, Roche and Takeda for funding this issue of Lymphoma Matters. As per our policy, they have no influence over our content.

Company Registration No 03518755 Charity Registration (England and Wales) No 1068395 (Scotland) No SC045850.

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